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Second Update from Ellis

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  • Second Update from Ellis

    Recapping, Jo had a colonoscopy that showed a mass in her sigmoid colon. Biopsies showed it to be adenosarcoma. She was scheduled for a sigmoid colon resection on Thursday. She had two infusions and pre-anesthesia screening which provided excellent information about all aspects of the planned surgery. The surgery on Thursday showed the mass to be much more intrusive into the bowels than an MRI had indicated so more than one resection was required. After the surgery she was transferred to the ICU. Yesterday we were expecting her to move out of the ICU and into a ward. There weren't any beds available in the selected ward so she stayed in the ICU.

    Last night at about 10:00 PM her heart rate increased dramatically (190 bpm) and it was determined to be atrial fibrillation. Since AF has a number of causes; surgery, a blood clot in the lung, or a heart condition, she was given medication, an ultrasound to see if there was a clot, a CT scan, a chest X-ray and an echocardiogram. There doesn't appear to be a clot or a heart problem and the meds have it stabilized. The medical team will confer to see when she can be released from the ICU. Stay tuned for the continuing adventures of Jo Grace, girl medical experiment.

    For those who don't know her history, she had surgery for portal hypertension, due to blockage in her liver, in 1989 after vomiting a large quantity of blood from varices in her esophagus They attempted a shunt to bypass blood from the liver to reduce the pressure on the capillaries in the esophagus. It failed. She then had recurring bleeding from the varices every 2 or 3 years which they treated by sclerosing them and with a blood pressure reducing drug. In 2001, she had a splenectomy after another such incident revealed the splenic vein was now blocked. After the surgery she had a C Diff infection that took months, intravenous hydration so and multiple antibiotics to cure. At the same time she was diagnosed with polycythemia vera and given medicine to reduce the number of excess red and white cells and platelet precursors in her marrow. (Due to a non-inheritable gene mutation.) A few years ago one of those meds, a cytotoxin, began attacking normal cells and she had to stop taking it. So she has spent many, many days in the hospital, most of which included the sign on her room that is Latin for "Nothing by Mouth". And yet my strong, patient woman continues the battle.

  • #2
    Oh boy, I feel so sorry for Jo for having to go through all this. Will be praying for her as we all will. Thanks for the up date, Ellis, via Elaine.

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    • #3
      So glad I checked back. And Elaine, please tell Ellis thank you for keeping us notified.
      Love and prayers to this wonderful, positive friend!

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      • #4
        Well, I now have my nights & days mixed up. The Nurses came to turn me. It was 2 am and I thought it was 2 pm.
        I do hope to get some walking done today. But it'll be later I guess.
        ~~~~~~~~~~~~~~~~~~~~~~~
        Create a beautiful day wherever you go.

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        • #5
          Wow.. and there is Ms Grace herself... the toughest ,fightingest lady I know!.... prayers galore... and many many thoughts of you through the day.

          Ellis ,, thanks for the medical recap.. the drs. have pretty much rearrange Jo's insides. ...

          ((((((((((((((((((((((((JoG)))))))))))))))))))))
          Take it one Day , one step, at a time.. cause that's all we really have.

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          • #6
            Good to see you up & about Jo!!! ((Jo)) We do worry about you and truly do care what's happening & appreciate the updates. I thrilled when it's coming from you.

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            • #7
              I cannot even pretend to understand what you have and are now going through so will just continue to send prayers and positive thoughts.

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              • #8
                You go girl. You are one tough lady. Glad to see that you're improving. Hang in there. ((((((((((Jo)))))))))

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                • #9
                  Thanks to Ellis for the update and then to see JO check in herself made me really happy. I love the line from Ellis about staying tuned for the adventures. His positive addtitude keeps the entire family's spirits up. Continued prayers for all of them.

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                  • #10
                    Yay! To see you post, Jo!
                    Hugs and prayers and everything good coming your way!

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                    • #11
                      Jo has been through a lot and more to come, but like Ellis has pointed out, she is strong and a fighter, look at all she has been through in her life already medically...Love, hugs and prayers will continue..
                      Live simply, love generously, care deeply, speak kindly, and leave the rest to God

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                      • #12
                        Hi, friends.
                        Recuperating is slow, can be painful,.........
                        ~~~~~~~~~~~~~~~~~~~~~~~
                        Create a beautiful day wherever you go.

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                        • #13
                          Interrupting, and any thing but speedy. A couple of DDs will be here in a couple of hours.
                          The tests apparently won't take a breath for them.
                          The show must go on.
                          I won't get much accomplished today. The good news is that my body is doing too that is expected.
                          But could be doing better.
                          ~~~~~~~~~~~~~~~~~~~~~~~
                          Create a beautiful day wherever you go.

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                          • #14
                            Breather from. Should be in the awkward sentence.

                            Last night I had 6 testers, didn't know what I was supposed to do. Some came by twice.
                            ~~~~~~~~~~~~~~~~~~~~~~~
                            Create a beautiful day wherever you go.

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                            • #15
                              Jo it is so great to see you posting, just remember what Maye was telling David "Your body has been through a lot, take time to let it heal" even if that time seems to slow to you. I think you are doing great, some wouldn't be up to posting on the internet yet.

                              Big Hugs to both you and Ellis

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